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HOUSE 534116th CongressReferred to the Subcommittee on Health.

Aidan’s Law

Last Action
1/25/2019

Actions

  • 2019-01-25Referred to the Subcommittee on Health.
  • 2019-01-14Referred to the House Committee on Energy and Commerce.
  • 2019-01-14Introduced in House
  • 2019-01-14Introduced in House

CRS Summary

As of 2019-01-14 (00)

Aidan's Law

This bill authorizes newborn screenings for adrenoleukodystrophy (also known as ALD), which is a hereditary condition that damages the insulating membrane of nerve cells in the brain. The bill authorizes hospitals, child care centers, clinics, and similar institutions to test newborns for ALD in accordance with state protocols; such protocols must be approved by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children.

The bill also reauthorizes for FY2020-FY2023 the heritable disorders screening program for newborns and children that is administered by the Health Resources and Services Administration.

Cosponsors (5)

  • Lee Zeldin (R-NY)
  • BOBBY RUSH (D-IL)
  • ZOE LOFGREN (D-CA)
  • Dwight Evans (D-PA)
  • NITA LOWEY (D-NY)

Subjects

  • Advisory bodies
  • Child health
  • Health promotion and preventive care
  • Hereditary and development disorders
  • Medical tests and diagnostic methods
  • Neurological disorders
Read on Congress.gov

Sourced from Congress.gov (public domain).

This is legal information, not legal advice. Laws vary by jurisdiction and change frequently. Always verify current law with official sources and consult a licensed attorney in your jurisdiction for advice on your specific situation.