Newborn Screening Saves Lives Reauthorization Act of 2025
- Last Action
- 9/10/2025
Actions
- 2025-09-10Forwarded by Subcommittee to Full Committee by Voice Vote.
- 2025-09-10Subcommittee Consideration and Mark-up Session Held
- 2025-09-10Referred to the Subcommittee on Health.
- 2025-07-23Referred to the House Committee on Energy and Commerce.
- 2025-07-23Introduced in House
- 2025-07-23Introduced in House
CRS Summary
As of 2025-07-23 (00)
Newborn Screening Saves Lives Reauthorization Act of 2025
This bill reauthorizes through FY2030 and revises several programs and activities relating to newborn screening for certain conditions and diseases.
Among its changes, the bill reauthorizes and makes mandatory
- the Hunter Kelly Research Program at the National Institutes of Health, and
- national surveillance activities conducted by the Centers for Disease Control and Prevention.
The bill also provides statutory authority for current regulations that exempt federally funded research on non-identified newborn blood spots (i.e., residual blood samples used to screen for serious conditions) from regulations that govern research on human subjects.
Cosponsors (7)
- Michael Simpson (R-ID)
- Kim Schrier (D-WA)
- Nicholas Langworthy (R-NY)
- Greg Stanton (D-AZ)
- Michael Lawler (R-NY)
- Jake Auchincloss (D-MA)
- Nikki Budzinski (D-IL)
Subjects
- Advisory bodies
- Child health
- Data collection, sharing, protection
- Drug safety, medical device, and laboratory regulation
- Genetics
- Government information and archives
- Hereditary and development disorders
- Medical research
- Medical tests and diagnostic methods
- Performance measurement
- Research administration and funding
Sourced from Congress.gov (public domain).
This is legal information, not legal advice. Laws vary by jurisdiction and change frequently. Always verify current law with official sources and consult a licensed attorney in your jurisdiction for advice on your specific situation.