Notice2026-08669
Proposed Data Collection Submitted for Public Comment and Recommendations
Primary source
Metadata and text below are from the Federal Register, a public-domain U.S. government work. Always verify the official published version before relying on it for any legal matter.
Published
May 5, 2026
Issuing agencies
Health and Human Services DepartmentCenters for Disease Control and Prevention
Abstract
The Centers for Disease Control and Prevention (CDC), as part of its continuing effort to reduce public burden and maximize the utility of government information, invites the general public and other federal agencies the opportunity to comment on a continuing information collection, as required by the Paperwork Reduction Act of 1995. This notice invites comment on a proposed information collection project titled World Trade Center Health Program Enrollment, Appeals & Reimbursement. This data collection is a federal limited benefit health care program providing medical monitoring and treatment benefits to eligible firefighters and related personnel, law enforcement officers, and rescue, recovery, and cleanup workers who responded to the September 11, 2001, attacks in New York City, at the Pentagon, and in Shanksville, Pennsylvania.
Full Text
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<title>Federal Register, Volume 91 Issue 86 (Tuesday, May 5, 2026)</title>
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[Federal Register Volume 91, Number 86 (Tuesday, May 5, 2026)]
[Notices]
[Pages 24242-24244]
From the Federal Register Online via the Government Publishing Office [<a href="http://www.gpo.gov">www.gpo.gov</a>]
[FR Doc No: 2026-08669]
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DEPARTMENT OF HEALTH AND HUMAN SERVICES
Centers for Disease Control and Prevention
[60Day-26-0891; Docket No. CDC-2026-0727]
Proposed Data Collection Submitted for Public Comment and
Recommendations
AGENCY: Centers for Disease Control and Prevention (CDC), Department of
Health and Human Services (HHS).
ACTION: Notice with comment period.
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SUMMARY: The Centers for Disease Control and Prevention (CDC), as part
of its continuing effort to reduce public burden and maximize the
utility of government information, invites the general public and other
federal agencies the opportunity to comment on a continuing information
collection, as required by the Paperwork Reduction Act of 1995. This
notice invites comment on a proposed information collection project
titled World Trade Center Health Program Enrollment, Appeals &
Reimbursement. This data collection is a federal limited benefit health
care program providing medical monitoring and treatment benefits to
eligible firefighters and related personnel, law enforcement officers,
and rescue, recovery, and cleanup workers who responded to the
September 11, 2001, attacks in New York City, at the Pentagon, and in
Shanksville, Pennsylvania.
DATES: CDC must receive written comments on or before July 6, 2026.
ADDRESSES: You may submit comments, identified by Docket No. CDC-2026-
0727 by either of the following methods:
<bullet> Federal eRulemaking Portal: <a href="http://www.regulations.gov">www.regulations.gov</a>. Follow
the instructions for submitting comments.
<bullet> Mail: Jeffrey M. Zirger, Information Collection Review
Office, Centers for Disease Control and Prevention, 1600 Clifton Road
NE, MS H21-8, Atlanta, Georgia 30329.
Instructions: All submissions received must include the agency name
and Docket Number. CDC will post, without change, all relevant comments
to <a href="http://www.regulations.gov">www.regulations.gov</a>.
Please note: Submit all comments through the Federal eRulemaking
portal (<a href="http://www.regulations.gov">www.regulations.gov</a>) or by U.S. mail to the address listed
above.
FOR FURTHER INFORMATION CONTACT: To request more information on the
proposed project or to obtain a copy of the information collection plan
and instruments, contact Jeffrey M. Zirger, Information Collection
Review Office,
[[Page 24243]]
Centers for Disease Control and Prevention, 1600 Clifton Road NE, MS
H21-8, Atlanta, Georgia 30329; Telephone: 404-639-7570; Email:
<a href="/cdn-cgi/l/email-protection#8ae5e7e8cae9eee9a4ede5fc"><span class="__cf_email__" data-cfemail="d6b9bbb496b5b2b5f8b1b9a0">[email protected]</span></a>.
SUPPLEMENTARY INFORMATION: Under the Paperwork Reduction Act of 1995
(PRA) (44 U.S.C. 3501-3520), federal agencies must obtain approval from
the Office of Management and Budget (OMB) for each collection of
information they conduct or sponsor. In addition, the PRA also requires
federal agencies to provide a 60-day notice in the Federal Register
concerning each proposed collection of information, including each new
proposed collection, each proposed extension of existing collection of
information, and each reinstatement of previously approved information
collection before submitting the collection to the OMB for approval. To
comply with this requirement, we are publishing this notice of a
proposed data collection as described below.
The OMB is particularly interested in comments that will help:
1. Evaluate whether the proposed collection of information is
necessary for the proper performance of the functions of the agency,
including whether the information will have practical utility;
2. Evaluate the accuracy of the agency's estimate of the burden of
the proposed collection of information, including the validity of the
methodology and assumptions used;
3. Enhance the quality, utility, and clarity of the information to
be collected;
4. Minimize the burden of the collection of information on those
who are to respond, including through the use of appropriate automated,
electronic, mechanical, or other technological collection techniques or
other forms of information technology, e.g., permitting electronic
submissions of responses; and
5. Assess information collection costs.
Proposed Project
World Trade Center Health Program Enrollment, Appeals &
Reimbursement (OMB Control No. 0920-0891, Exp. 5/31/2028)--Revision--
National Institute for Occupational Safety and Health (NIOSH), Centers
for Disease Control and Prevention (CDC).
Background and Brief Description
The National Institute for Occupational Safety and Health (NIOSH)
seeks OMB approval for a revision of an ongoing information collection,
World Trade Center Health Program Enrollment, Appeals & Reimbursement
(OMB Control No. 0920-0891, Exp. 5/31/2028). In accordance with the
James Zadroga 9/11 Health and Compensation Act of 2010, individuals
seeking enrollment in the World Trade Center (WTC) Health Program as
responders or survivors may apply to the Program. Title I of the
Zadroga Act (Pub. L. 111-347, as amended by Pub. L. 114-113 and Pub. L.
116-59), added Title XXXIII to the Public Health Service Act (PHS Act),
establishing the World Trade Center (WTC) Health Program within the
Department of Health and Human Services (HHS). The Director of NIOSH
serves as the Administrator of the WTC Health Program for most
purposes, with certain payment functions carried out by the Centers for
Medicare & Medicaid Services (CMS).
As established by the Zadroga Act, the WTC Health Program is a
federal limited benefit health care program providing medical
monitoring and treatment benefits to eligible firefighters and related
personnel, law enforcement officers, and rescue, recovery, and cleanup
workers who responded to the September 11, 2001, attacks in New York
City, at the Pentagon, and in Shanksville, Pennsylvania (responders),
and to eligible persons who were present in the dust or dust cloud on
September 11, 2001, or who worked, resided, or attended school,
childcare, or adult daycare in the New York City disaster area
(survivors). The WTC Health Program has been authorized for 75 years
(through 2090).
In December 2022, Congress amended the Public Health Service Act
(42 U.S.C. 300mm-51(c)) to include a Research Cohort for Emerging
Health Impacts on Youth (individuals who were 21 years of age or
younger on September 11, 2001). This act instructs the WTC Health
Program Administrator to establish this research cohort. In this
Revision, NIOSH requests OMB approval of revisions to the web-based
Youth Research Cohort (YRC) portal, which will be used to engage
potential future cohort participants and facilitate Program's efforts
to educate potential participants about the YRC. In this Revision,
total annualized burden will decrease from 14,332 hours to 11,332 (-
3,000 hours). This Revision decreases the amount of time expected for
potential YRC participants to provide the requested information by
replacing the previous Youth Research Cohort Registration Portal form
with a new Youth Research Cohort Information Form. Burden hours are
further reduced by eliminating the previous Youth Research Cohort
Registration HIPAA Authorization Form which previously asked potential
YRC participants to provide protected health information.
CDC requests OMB approval for an estimated 11,332 annual burden
hours. There are no additional costs to respondents other than their
time to participate.
Estimated Annualized Burden Hours
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Number Average burden
Type of respondent Form name Number of responses per per response Total burden
respondents respondent (in hours) hours
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FDNY Responder................................. World Trade Center Health Program FDNY 140 1 30/60 70
Responder Application for Enrollment.
General Responder.............................. World Trade Center Health Program 6,215 1 30/60 3,108
Responder Application for Enrollment
(Other than FDNY).
Pentagon/Shanksville Responder................. World Trade Center Health Program 742 1 30/60 371
Pentagon/Shanksville Responder
Application for Enrollment.
WTC Survivor................................... World Trade Center Health Program 9,240 1 30/60 4,620
Survivor Application for Enrollment
(all languages).
General responder.............................. Clinic Selection Postcard for new 3,830 1 15/60 958
general responders in NY/NJ to select
a clinic.
Interested Party............................... Petition for the addition of health 35 1 1 35
conditions.
Program Applicants or Members.................. Designated Representative Appointment 1,300 1 15/60 325
Form.
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Program Applicants or Members.................. Designated Representative HIPAA Release 1,300 1 15/60 325
Form.
General Public................................. WTC Health Program HIPAA Authorization 30 1 15/60 8
for Deceased Individuals.
Program Applicants or Members.................. WTC Health Program General HIPAA 30 1 15/60 8
Authorization to Third Parties.
Program Applicants or Members.................. Designated Representative Appointment 15 1 15/60 4
Form.
Youth Research Cohort Potential Participants... Youth Research Cohort Information Form. 6,000 1 15/60 1,500
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Total...................................... ....................................... .............. .............. .............. 11,332
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Jeffrey M. Zirger,
Lead, Information Collection Review Office, Office of Public Health
Ethics and Regulations, Office of Science, Centers for Disease Control
and Prevention.
[FR Doc. 2026-08669 Filed 5-4-26; 8:45 am]
BILLING CODE 4163-18-P
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