Notice2026-01618
Proposed Data Collection Submitted for Public Comment and Recommendations
Primary source
Metadata and text below are from the Federal Register, a public-domain U.S. government work. Always verify the official published version before relying on it for any legal matter.
Published
January 27, 2026
Issuing agencies
Health and Human Services DepartmentCenters for Disease Control and Prevention
Abstract
The Centers for Disease Control and Prevention (CDC), as part of its continuing efforts to reduce public burden and maximize the utility of government information, invites the general public and other federal agencies the opportunity to comment on a proposed information collection, as required by the Paperwork Reduction Act of 1995. This notice invites comment on a proposed information collection project titled, Evaluation of the Supporting Young Breast Cancer Survivors, Metastatic Breast Cancer Patients, and their Families Program. CDC is requesting to collect information about this program using a web-based survey and in-depth interviews to assess whether a specific cooperative agreement has been implemented as intended and to understand recipients' achievements of the program goals and outcomes.
Full Text
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<title>Federal Register, Volume 91 Issue 17 (Tuesday, January 27, 2026)</title>
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[Federal Register Volume 91, Number 17 (Tuesday, January 27, 2026)]
[Notices]
[Pages 3501-3502]
From the Federal Register Online via the Government Publishing Office [<a href="http://www.gpo.gov">www.gpo.gov</a>]
[FR Doc No: 2026-01618]
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DEPARTMENT OF HEALTH AND HUMAN SERVICES
Centers for Disease Control and Prevention
[60Day-26-0019; Docket No. CDC-2026-0101]
Proposed Data Collection Submitted for Public Comment and
Recommendations
AGENCY: Centers for Disease Control and Prevention (CDC), Department of
Health and Human Services (HHS).
ACTION: Notice with comment period.
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SUMMARY: The Centers for Disease Control and Prevention (CDC), as part
of its continuing efforts to reduce public burden and maximize the
utility of government information, invites the general public and other
federal agencies the opportunity to comment on a proposed information
collection, as required by the Paperwork Reduction Act of 1995. This
notice invites comment on a proposed information collection project
titled, Evaluation of the Supporting Young Breast Cancer Survivors,
Metastatic Breast Cancer Patients, and their Families Program. CDC is
requesting to collect information about this program using a web-based
survey and in-depth interviews to assess whether a specific cooperative
agreement has been implemented as intended and to understand
recipients' achievements of the program goals and outcomes.
DATES: CDC must receive written comments on or before March 30, 2026.
ADDRESSES: You may submit comments, identified by Docket No. CDC-2026-
0101 by either of the following methods:
<bullet> Federal eRulemaking Portal: <a href="http://www.regulations.gov">www.regulations.gov</a>. Follow
the instructions for submitting comments.
<bullet> Mail: Jeffrey M. Zirger, Information Collection Review
Office, Centers for Disease Control and Prevention, 1600 Clifton Road
NE, MS H21-8, Atlanta, Georgia 30329.
Instructions: All submissions received must include the agency name
and Docket Number. CDC will post, without change, all relevant comments
to <a href="http://www.regulations.gov">www.regulations.gov</a>.
Please note: Submit all comments through the Federal eRulemaking
portal (<a href="http://www.regulations.gov">www.regulations.gov</a>) or by U.S. mail to the address listed
above.
FOR FURTHER INFORMATION CONTACT: To request more information on the
proposed project or to obtain a copy of the information collection plan
and instruments, contact Jeffrey M. Zirger, Information Collection
Review Office, Centers for Disease Control and Prevention, 1600 Clifton
Road NE, MS H21-8, Atlanta, Georgia 30329; Telephone: 404-639-7570;
Email: <a href="/cdn-cgi/l/email-protection#b5dad8d7f5d6d1d69bd2dac3"><span class="__cf_email__" data-cfemail="4d22202f0d2e292e632a223b">[email protected]</span></a>.
SUPPLEMENTARY INFORMATION: Under the Paperwork Reduction Act of 1995
(PRA) (44 U.S.C. 3501-3520), federal agencies must obtain approval from
the Office of Management and Budget (OMB) for each collection of
information they conduct or sponsor. In addition, the PRA also requires
federal agencies to provide a 60-day notice in the Federal Register
concerning each proposed collection of information, including each new
proposed collection, each proposed extension of existing collection of
information, and each reinstatement of previously approved information
collection before submitting the collection to the OMB for approval. To
comply with this requirement, we are publishing this notice of a
proposed data collection as described below.
The OMB is particularly interested in comments that will help:
1. Evaluate whether the proposed collection of information is
necessary for the proper performance of the functions of the agency,
including whether the information will have practical utility;
2. Evaluate the accuracy of the agency's estimate of the burden of
the proposed collection of information, including the validity of the
methodology and assumptions used;
3. Enhance the quality, utility, and clarity of the information to
be collected;
4. Minimize the burden of the collection of information on those
who are to respond, including through the use of appropriate automated,
electronic, mechanical, or other technological collection techniques or
other forms of information technology, e.g., permitting electronic
submissions of responses; and
5. Assess information collection costs.
Proposed Project
Evaluation of the Supporting Young Breast Cancer Survivors,
Metastatic Breast Cancer Patients, and their Families Program--New--
National Center for Chronic Disease Prevention and Health Promotion
(NCCDPHP), Centers for Disease Control and Prevention (CDC).
Background and Brief Description
The Supporting Young Breast Cancer Survivors, Metastatic Breast
Cancer Patients, and their Families program is part of a nationwide
initiative of the Centers for Disease Control and Prevention (CDC). In
response to the 2010 Education and Awareness Requires Learning Young
(EARLY) Act, CDC established the Young Breast Cancer Survivors (YBCS)
program, which aims to increase the health and quality of life for
women under 45 diagnosed with breast cancer. The YBCS program addresses
the unique challenges young women diagnosed with breast cancer
encounter such as late detection, aggressive treatment options, severe
side effects from treatments, and reproductive health needs such as
counseling about premature menopause or fertility changes, which can
complicate their care. Recognizing the severity of late-stage cancer,
the YBCS program expanded to include young metastatic breast cancer
(MBC) patients as they often face significantly aggressive and costly
treatments due to harder-to-treat subtypes. CDC awards cooperative
agreements to organizations that
[[Page 3502]]
demonstrate the capacity to implement proven and innovative strategies
to support YBCS, MBC patients, and their families. Those organizations
work to: (1) foster meaningful partnerships; (2) educate, inform, and
support young breast cancer survivors, metastatic breast cancer
patients, and their families; and (3) educate health care providers,
community health workers, and patient navigators.
CDC proposes to evaluate the fourth YBCS program cycle (DP24-0061)
to examine the funded organizations that provide structured support
services, resources, or education to young breast cancer survivors,
metastatic breast cancer patients, their families, health care
providers, community health workers, and patient navigators. The
evaluation will include two primary data collection methods: (1) in-
depth interviews; and (2) a web-based survey with each of the 11 funded
organizations. Data collection will be facilitated annually with key
programmatic staff from the funded organizations to better understand
implementation efforts, challenges faced, and outcomes achieved.
To facilitate recruitment and scheduling for the evaluation, four
forms of information collection will be implemented. This includes a
nomination form and three scheduling forms tailored to the interview
respondent's role in the program (one per role: Program Leadership,
Program Implementer, and Evaluator). The nomination form will assist
recipients with identifying primary and alternate respondents for the
interviews and web-survey. The scheduling forms will help invited
participants to quickly identify suitable times for interviews. The
gather insights from respondents, four additional forms of information
will be administered. This includes a web-based survey and three
interview guides (one per role: Program Leadership, Program
Implementer, Evaluator). The web-based survey will gather information
regarding implementation efforts, promising practices, and outcomes of
the YBCS program (DP24-0061). The virtual in-depth interviews will be
used to provide additional context for how YBCS program recipients
(DP24-0061) implement and assess their respective strategies; the
factors that facilitate or impede the implementation of specific
activities, interventions, and strategies; and the extent to which
recipients were able to achieve planned outcomes.
The evaluation may yield information from programs related to
support services, resources, and patient-provider interactions. CDC
will be able to use the findings from the evaluation to enhance
existing efforts to provide educational resources and support services
to YBCS, MBC patients, their families, and heath care workers and to
inform future funded YBCS programs. Findings will be summarized in a
topline report by methodology as well as a comprehensive report.
CDC is requesting new approval. OMB approval is requested for three
years. The total estimated annual burden is 79 hours. There are no
costs to respondents other than their time.
Estimated Annualized Burden Hours
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Number of Average burden
Type of respondents Form name Number of responses per per response Total burden
respondents respondent (in hrs.) (in hours)
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Program Leadership............ Nomination Form. 15 1 30/60 8
Program Leadership............ Interview 4 1 5/60 1
Scheduling Form.
Program Implementer........... Interview 7 1 5/60 1
Scheduling Form.
Evaluator..................... Interview 4 1 5/60 1
Scheduling Form.
Program Leadership............ Program 4 1 1.5 6
Leadership
Interview Guide.
Program Implementer........... Program 7 1 1.5 11
Implementer
Interview Guide.
Evaluator..................... Evaluator 4 1 1.5 6
Interview Guide.
Program Leadership............ Web-based Survey 15 1 3 45
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Total..................... ................ 60 .............. .............. 79
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Jeffrey M. Zirger,
Lead, Information Collection Review Office, Office of Public Health
Ethics and Regulations, Office of Science, Centers for Disease Control
and Prevention.
[FR Doc. 2026-01618 Filed 1-26-26; 8:45 am]
BILLING CODE 4163-18-P
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