Notice2025-17215
Sickle Cell Disease Newborn Screening Follow-Up Program
Primary source
Metadata and text below are from the Federal Register, a public-domain U.S. government work. Always verify the official published version before relying on it for any legal matter.
Published
September 8, 2025
Issuing agencies
Health and Human Services DepartmentHealth Resources and Services Administration
Abstract
HRSA will provide $65,500 in supplemental award funds to each of the 25 Sickle Cell Disease (SCD) Newborn Screening Follow-Up Program (NBS FP) grantees under HRSA-21-036 in fiscal year (FY) 2025, totaling $1,637,500. The FY 2025 supplemental funds will support grant activities that are in scope of program goals and objectives. The supplemental funding can support activities related to: increasing access to medical and support services, particularly during the pediatric to adult transition period; improving data systems; increasing workforce training and knowledge; expanding quality improvement projects; or conducting outreach to help identify individuals living with SCD who have been lost to follow-up. These activities will strengthen the linkage of individuals with SCD to appropriate and ongoing care to improve health outcomes.
Full Text
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<title>Federal Register, Volume 90 Issue 171 (Monday, September 8, 2025)</title>
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[Federal Register Volume 90, Number 171 (Monday, September 8, 2025)]
[Notices]
[Pages 43190-43191]
From the Federal Register Online via the Government Publishing Office [<a href="http://www.gpo.gov">www.gpo.gov</a>]
[FR Doc No: 2025-17215]
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DEPARTMENT OF HEALTH AND HUMAN SERVICES
Health Resources and Services Administration
Sickle Cell Disease Newborn Screening Follow-Up Program
AGENCY: Health Resources and Services Administration (HRSA), Department
of Health and Human Services.
ACTION: Notice of Supplemental awards.
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SUMMARY: HRSA will provide $65,500 in supplemental award funds to each
of the 25 Sickle Cell Disease (SCD) Newborn Screening Follow-Up Program
(NBS FP) grantees under HRSA-21-036 in fiscal year (FY) 2025, totaling
$1,637,500. The FY 2025 supplemental funds will support grant
activities that are in scope of program goals and objectives. The
supplemental funding can support activities related to: increasing
access to medical and support services, particularly during the
pediatric to adult transition period; improving data systems;
increasing workforce training and knowledge; expanding quality
improvement projects; or conducting outreach to help identify
individuals living with SCD who have been lost to follow-up. These
activities will strengthen the linkage of individuals with SCD to
appropriate and ongoing care to improve health outcomes.
FOR FURTHER INFORMATION CONTACT: Hakim Fobia, Public Health Analyst and
Project Officer, Genetic Services Branch, Division of Services for
Children with Special Health Needs, HRSA, at <a href="/cdn-cgi/l/email-protection#3546565145475a5247545846755d4746541b525a43"><span class="__cf_email__" data-cfemail="681b0b0c181a070f1a09051b28001a1b09460f071e">[email protected]</span></a> or
301-945-9842.
SUPPLEMENTARY INFORMATION:
Intended Recipients of the Award: 25 SCD NBS FP recipients listed
in Table 1.
Amount of Non-Competitive Awards: 25 awards at $65,500 (total:
$1,637,500).
[[Page 43191]]
Project Period: September 1, 2021, to August 31, 2026.
Assistance Listing Number: 93.110.
Award Instrument: Non-competitive supplement.
Authority: 42 U.S.C. 701(a)(2) (Sec. 501(a)(2) of the Social
Security Act).
Table 1--Recipient(s) and Award Amount(s)
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Award
Grant No. Award recipient name City, state amount
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D1JMC42466.......................... Sickle Cell Disease Association Chicago, IL................ $65,500
of Illinois.
D1JMC42474.......................... Hemostasis and Thrombosis Center Las Vegas, NV.............. 65,500
of Nevada.
D1JMC42475.......................... Ohio Sickle Cell & Health Columbus, OH............... 65,500
Association, Inc.
D1JMC42467.......................... Martin Center, Inc.............. Indianapolis, IN........... 65,500
D1JMC42468.......................... Baton Rouge Sickle Cell Anemia Baton Rouge, LA............ 65,500
Foundation, Inc.
D1JMC42463.......................... Cayenne Wellness Center and Burbank, CA................ 65,500
Children's Foundation, Inc.
D1JMC42472.......................... Children's Sickle Cell Pittsburgh, PA............. 65,500
Foundation, Inc.
D1JMC42473.......................... James R. Clark Memorial Sickle Columbia, SC............... 65,500
Cell Foundation.
D1JMC42471.......................... Piedmont Health Services and Greensboro, NC............. 65,500
Sickle Cell Agency.
D1JMC42476.......................... Sickle Cell Anemia Foundation of Portland, OR............... 65,500
Oregon, Inc.
D1JMC42470.......................... Sickle Cell Association......... Florissant, MO............. 65,500
D1JMC42477.......................... The Sickle Cell Association of Newark, NJ................. 65,500
New Jersey, Inc.
D1JMC42469.......................... Sickle Cell Disease Association Detroit, MI................ 65,500
of America Michigan Chapter,
Inc.
D1JMC42478.......................... Sickle Cell Disease Association Philadelphia, PA........... 65,500
of America Philadelphia-
Delaware Valley Chapter.
D1JMC42462.......................... Sickle Cell Foundation of Vail, AZ................... 65,500
Arizona, Inc.
D1JMC42465.......................... Sickle Cell Foundation of Atlanta, GA................ 65,500
Georgia, Inc.
D1JMC42479.......................... Sickle Cell Association of Texas Austin, TX................. 65,500
Marc Thomas Foundation.
D1JMC42480.......................... Sickle Cell/Thalassemia Patients Brooklyn, NY............... 65,500
Networks, Inc.
D1JMC42481.......................... Supporters of Families with Tulsa, OK.................. 65,500
Sickle Cell Disease, Inc.
D1JMC42464.......................... University of Miami............. Miami, FL.................. 65,500
D1JMC46837.......................... Sickle Cell Disease Foundation.. Ontario, CA................ 65,500
D1JMC46836.......................... Sickle Cell Disease Association Mobile, AL................. 65,500
of America Mobile Chapter.
D1JMC46834.......................... Crescent Foundation, Inc........ Philadelphia, PA........... 65,500
D1JMC46835.......................... Metropolitan Seattle Sickle Cell Seattle, WA................ 65,500
Task Force.
D1JMC46838.......................... Sickle Cell Foundation of Memphis, TN................ 65,500
Tennessee.
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Justification: In year 4 of 5 of this program, funding is being
made available for FY 2025 to 25 current funding recipients under HRSA-
21-036 to facilitate access to quality SCD care by conducting outreach
and working with individuals living with SCD and families from the time
a newborn screen identifies a child with possible SCD through
diagnosis, treatment, and follow-up across the lifespan. Such funding
helps bridge access to services by supporting community-based
organizations in reaching individuals in the communities where they
reside and providing a critical link to health care and other social
services to improve the lives of individuals living with SCD. SCD NBS
FP grantees will use the supplemental funding to improve appropriate
health care and social services utilization by targeting direct and
indirect barriers to accessing health care such as transition support,
social service linkage, data system development, workforce educational
support and training, expanding quality improvement projects, and other
services. The above activities are within the scope of the NBS FP
program as described in HRSA-21-036.
Thomas J. Engels,
Administrator.
[FR Doc. 2025-17215 Filed 9-5-25; 8:45 am]
BILLING CODE 4165-15-P
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