Notice2025-16649
Notice of Supplemental Funding; Autism Longitudinal Data Project and Linking the Boston Birth Cohort and Pregnancy to Health Databases: A Longitudinal Cohort of Mother-Child Dyads
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Published
August 29, 2025
Issuing agencies
Health and Human Services DepartmentHealth Resources and Services Administration
Abstract
HRSA is announcing supplemental award funds through the Patient-Centered Outcomes Research Trust Fund to the current HRSA award recipient to build further data capacity under the Autism Longitudinal Data Project. The funding will support this multi-agency data linkage project linking existing datasets to create a comprehensive longitudinal dataset. Supplemental funding was previously awarded in fiscal year 2024 for the initial phase of the project, which started in July 2024, and this award will continue that work.
Full Text
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<title>Federal Register, Volume 90 Issue 166 (Friday, August 29, 2025)</title>
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[Federal Register Volume 90, Number 166 (Friday, August 29, 2025)]
[Notices]
[Page 42255]
From the Federal Register Online via the Government Publishing Office [<a href="http://www.gpo.gov">www.gpo.gov</a>]
[FR Doc No: 2025-16649]
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DEPARTMENT OF HEALTH AND HUMAN SERVICES
Health Resources and Services Administration
Notice of Supplemental Funding; Autism Longitudinal Data Project
and Linking the Boston Birth Cohort and Pregnancy to Health Databases:
A Longitudinal Cohort of Mother-Child Dyads
AGENCY: Health Resources and Services Administration (HRSA), Department
of Health and Human Services.
ACTION: Notice of supplemental funding.
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SUMMARY: HRSA is announcing supplemental award funds through the
Patient-Centered Outcomes Research Trust Fund to the current HRSA award
recipient to build further data capacity under the Autism Longitudinal
Data Project. The funding will support this multi-agency data linkage
project linking existing datasets to create a comprehensive
longitudinal dataset. Supplemental funding was previously awarded in
fiscal year 2024 for the initial phase of the project, which started in
July 2024, and this award will continue that work.
FOR FURTHER INFORMATION CONTACT: Evva Assing-Murray, Senior Health
Scientist, Division of Research, Office of Epidemiology and Research,
Maternal and Child Health Bureau, HRSA, at <a href="/cdn-cgi/l/email-protection#f2b7b381819b9c95dfbf878080938bb29a808193dc959d84"><span class="__cf_email__" data-cfemail="97d2d6e4e4fef9f0badae2e5e5f6eed7ffe5e4f6b9f0f8e1">[email protected]</span></a> or
301-594-4113.
SUPPLEMENTARY INFORMATION:
Intended Recipient of the Award: Johns Hopkins University.
Amount of Non-Competitive Award: One award for $533,887.
Project Period: September 1, 2022, to August 31, 2027.
Assistance Listing Number: 93.877.
Award Instrument: Non-competitive single-source supplement.
Authority: 26 U.S.C. 9511(d)(2)(C).
Table 1--Recipient(s) and Award Amount(s)
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Grant No. Award recipient name City, state Award amount
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UT7MC45949....................... Johns Hopkins University........ Baltimore, MD.............. $533,887
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Justification: There is a lack of longitudinal data from birth
cohorts in the United States to assess maternal and infant health and
inter-generational health from a life course perspective. Through this
supplement, the data linkage will generate a rich dataset with a broad
array of data on biological, socio-economic, home and neighborhood
environment, behavioral risk and protective factors, health services,
and expenses across the developmental and life stages. Johns Hopkins
University is uniquely qualified to conduct this work because it has:
<bullet> A long-standing record of successfully completing
government-funded projects. Johns Hopkins University is currently in
the 4th year of its second 5-year award from HRSA and has consistently
met its goals and objectives.
<bullet> Led and managed the Boston Birth Cohort since its
inception in 1998. As such, Johns Hopkins University is experienced in
the:
[cir] Complexities of data sharing across institutions, and
[cir] Technical aspects of linking data.
<bullet> Access to these restricted datasets. The Boston Birth
Cohort is a restricted use data resource that contains personally
identifiable, confidential data, the disclosure of which is protected
by law. Johns Hopkins University and its clinical site, Boston Medical
Center, maintain these data and are the only entities that currently
have access to the datasets required for this activity.
This data linkage project will run from July 2024 to July 2027.
This is a continuation of an ongoing activity that was funded in fiscal
year 2024 to the same intended recipient. The Patient-Centered Outcomes
Research Trust Fund, administered by the Office of the Assistant
Secretary for Planning and Evaluation, funds this supplement.
Thomas J. Engels,
Administrator.
[FR Doc. 2025-16649 Filed 8-28-25; 8:45 am]
BILLING CODE 4165-15-P
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