Notice2024-22733
Meeting of the Advisory Committee on Heritable Disorders in Newborns and Children
Primary source
Metadata and text below are from the Federal Register, a public-domain U.S. government work. Always verify the official published version before relying on it for any legal matter.
Published
October 3, 2024
Issuing agencies
Health and Human Services DepartmentHealth Resources and Services Administration
Abstract
In accordance with the Federal Advisory Committee Act, this notice announces that the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC or Committee) has scheduled a public meeting. Information about ACHDNC and the agenda for this meeting can be found on the ACHDNC website at https://www.hrsa.gov/advisory- committees/heritable-disorders/index.html.
Full Text
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<title>Federal Register, Volume 89 Issue 192 (Thursday, October 3, 2024)</title>
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[Federal Register Volume 89, Number 192 (Thursday, October 3, 2024)]
[Notices]
[Pages 80573-80574]
From the Federal Register Online via the Government Publishing Office [<a href="http://www.gpo.gov">www.gpo.gov</a>]
[FR Doc No: 2024-22733]
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DEPARTMENT OF HEALTH AND HUMAN SERVICES
Health Resources and Services Administration
Meeting of the Advisory Committee on Heritable Disorders in
Newborns and Children
AGENCY: Health Resources and Services Administration (HRSA), Department
of Health and Human Services.
ACTION: Notice.
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SUMMARY: In accordance with the Federal Advisory Committee Act, this
notice announces that the Advisory Committee on Heritable Disorders in
Newborns and Children (ACHDNC or Committee) has scheduled a public
meeting. Information about ACHDNC and the agenda for this meeting can
be found on the ACHDNC website at <a href="https://www.hrsa.gov/advisory-committees/heritable-disorders/index.html">https://www.hrsa.gov/advisory-committees/heritable-disorders/index.html</a>.
DATES: Thursday, November 14, 2024, from 10 a.m. to 4 p.m. eastern time
(ET).
ADDRESSES: This meeting will be held via webinar. While this meeting is
open to the public, advance registration is
[[Page 80574]]
required. Please visit the ACHDNC website for information on
registration: <a href="https://www.hrsa.gov/advisory-committees/heritable-disorders/index.html">https://www.hrsa.gov/advisory-committees/heritable-disorders/index.html</a>. Register no later than 12:00 p.m. ET on November
13, 2024. Instructions on how to access the meeting via webcast will be
provided upon registration.
FOR FURTHER INFORMATION CONTACT: Leticia Manning, Maternal and Child
Health Bureau, HRSA, 5600 Fishers Lane, Room, Rockville, Maryland
20857; 301-443-8335; or <a href="/cdn-cgi/l/email-protection#f1b0b2b9b5bfb2b199838290df969e87"><span class="__cf_email__" data-cfemail="4504060d010b06052d3736246b222a33">[email protected]</span></a>.
SUPPLEMENTARY INFORMATION: ACHDNC provides advice and recommendations
to the Secretary of Health and Human Services (Secretary) on the
development of newborn screening activities, technologies, policies,
guidelines, and programs for effectively reducing morbidity and
mortality in newborns and children having, or at risk for, heritable
disorders. ACHDNC reviews and reports regularly on newborn and
childhood screening practices, recommends improvements in the national
newborn and childhood screening programs, and fulfills requirements
stated in the authorizing legislation. In addition, ACHDNC's
recommendations regarding inclusion of additional conditions for
screening on the Recommended Uniform Screening Panel, following
adoption by the Secretary, are evidence-informed preventive health
services provided for in the comprehensive guidelines supported by HRSA
pursuant to section 2713 of the Public Health Service Act (42 U.S.C.
300gg-13). Under this provision, non-grandfathered group health plans
and health insurance issuers offering non-grandfathered group or
individual health insurance are required to provide insurance coverage
without cost-sharing (a co-payment, co-insurance, or deductible) for
preventive services for plan years (i.e., policy years) beginning on or
after the date that is 1 year from the Secretary's adoption of the
condition for screening.
During the November 14, 2024, meeting, ACHDNC will hear from
experts in the fields of public health, medicine, heritable disorders,
rare disorders, and newborn screening. Possible agenda items may
include the following topics:
(1) An update on the development of a newborn screening family
outcomes tool,
(2) A panel presentation on funding opportunities for research that
includes the lived experience,
(3) A presentation on the Newborn Screening Information Center, and
(4) An update on Recommended Uniform Screening Panel condition
nomination submissions.
Agenda items are subject to change as priorities dictate.
Information about ACHDNC, including a roster of members and past
meeting summaries, is available on the ACHDNC website listed above.
Members of the public will have the opportunity to provide comments
on any of the above agenda items. Public participants may request to
provide general oral comments and may submit written statements in
advance of the scheduled meeting. Oral comments will be honored in the
order they are requested and may be limited as time allows. Requests to
provide a written statement or make oral comments to ACHDNC must be
submitted via the registration website by 12:00 p.m. ET on Thursday,
October 31, 2024. Written comments will be shared with the Committee
prior to the meeting so they have an opportunity to consider them in
advance of the meeting.
Individuals who need special assistance or another reasonable
accommodation should notify Leticia Manning at the address and phone
number listed above at least 10 business days prior to the meeting.
Maria G. Button,
Director, Executive Secretariat.
[FR Doc. 2024-22733 Filed 10-2-24; 8:45 am]
BILLING CODE 4165-15-P
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