Notice2022-06367
Solicitation of Nominations for Membership To Serve on the Advisory Committee on Heritable Disorders in Newborns and Children
Primary source
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Published
March 28, 2022
Issuing agencies
Health and Human Services DepartmentHealth Resources and Services Administration
Abstract
HRSA is seeking nominations of qualified candidates for consideration for appointment as members of the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC or Committee). ACHDNC provides advice, recommendations, and technical information about aspects of heritable disorders and newborn and childhood screening to the Secretary of HHS (Secretary). HRSA is seeking nominations of qualified candidates for appointment to two positions on the Committee beginning in 2023, each serving a term of up-to 4 years.
Full Text
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<title>Federal Register, Volume 87 Issue 59 (Monday, March 28, 2022)</title>
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[Federal Register Volume 87, Number 59 (Monday, March 28, 2022)]
[Notices]
[Pages 17308-17309]
From the Federal Register Online via the Government Publishing Office [<a href="http://www.gpo.gov">www.gpo.gov</a>]
[FR Doc No: 2022-06367]
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DEPARTMENT OF HEALTH AND HUMAN SERVICES
Health Resources and Services Administration
Solicitation of Nominations for Membership To Serve on the
Advisory Committee on Heritable Disorders in Newborns and Children
AGENCY: Health Resources and Services Administration (HRSA), Department
of Health and Human Services (HHS).
ACTION: Request for nominations.
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SUMMARY: HRSA is seeking nominations of qualified candidates for
consideration for appointment as members of the Advisory Committee on
Heritable Disorders in Newborns and Children (ACHDNC or Committee).
ACHDNC provides advice, recommendations, and technical information
about aspects of heritable disorders and newborn and childhood
screening to the Secretary of HHS (Secretary). HRSA is seeking
nominations of qualified candidates for appointment to two positions on
the Committee beginning in 2023, each serving a term of up-to 4 years.
DATES: Written nominations for membership on the Committee must be
received on or before April 11, 2022.
ADDRESSES: Nomination packages must be submitted electronically as
email attachments to Soohyun Kim, MPH, CPH, Acting Designated Federal
Officer (DFO) at <a href="/cdn-cgi/l/email-protection#6425272c202a27240c1617054a030b12"><span class="__cf_email__" data-cfemail="eeafada6aaa0adae869c9d8fc0898198">[email protected]</span></a>.
FOR FURTHER INFORMATION CONTACT: Acting DFO Soohyun Kim, MPH, CPH;
Maternal and Child Health Bureau, HRSA, 5600 Fishers Lane, Room 18-N-
38A, Rockville, MD 20857; 301-594-4202; or <a href="/cdn-cgi/l/email-protection#5a1b19121e14191a3228293b743d352c"><span class="__cf_email__" data-cfemail="4405070c000a07042c3637256a232b32">[email protected]</span></a>. A copy of
the Committee charter and list of the current membership is available
on the Committee's website at <a href="https://www.hrsa.gov/advisory-committees/heritable-disorders/about/index.html">https://www.hrsa.gov/advisory-committees/heritable-disorders/about/index.html</a>.
SUPPLEMENTARY INFORMATION: ACHDNC was established in 2003 to provide
advice and recommendations to the Secretary on the development of
newborn screening activities, technologies, policies, guidelines, and
programs for effectively reducing morbidity and mortality in newborns
and children having, or at risk for, heritable disorders. ACHDNC
reviews and reports regularly on newborn and childhood screening
practices for heritable disorders, recommends improvements in the
national newborn and childhood heritable screening programs, recommends
conditions for inclusion in the Recommended Uniform Screening Panel
(RUSP), and fulfills requirements stated in the authorizing
legislation. ACHDNC's recommendations regarding inclusion of additional
conditions/inherited disorders for screening that, when adopted by the
Secretary, are included in the RUSP, and constitute part of the
evidence-informed comprehensive preventive health services guidelines
supported by HRSA pursuant to section 2713 of the Public Health Service
Act (42 U.S.C. 300gg-13). Under this provision, non-grandfathered group
health plans and group and individual
[[Page 17309]]
health insurance issuers are required to provide insurance coverage
without cost-sharing (a co-payment, co-insurance, or deductible) for
preventive services for plan years (i.e., in the individual market,
policy years) beginning on or after the date that is 1 year from the
Secretary's adoption of the condition.
ACHDNC also provides advice and recommendations to the Secretary
concerning grants, projects and technical information to develop
policies and priorities for grants, including those that will enhance
the ability of the state and local health agencies to provide for
newborn and child screening, counseling, and health care services for
newborns and children having or at risk for heritable disorders.
ACHDNC meets four times each calendar year, or at the discretion of
the Acting DFO in consultation with the Chair.
Nominations: HRSA is requesting nominations for voting members to
serve as Special Government Employees (SGEs) on the ACHDNC to fill two
positions starting in 2023. The Secretary appoints ACHDNC members with
the expertise needed to fulfill the duties of the Committee. The
membership requirements are set forth in Title XI Sec. 1111(g), 42
U.S.C. 300b-10(g). Nominees sought are medical, technical, or
scientific professionals with special expertise in the field of
heritable disorders or in providing screening, counseling, testing, or
specialty services for newborns and children with, or at risk for
having, heritable disorders; individuals who have expertise in ethics
(e.g., bioethics) and infectious diseases and who have worked and
published material in the area of newborn screening; members of the
public having demonstrated expertise about or concern with heritable
disorders; and/or representatives from such federal agencies, public
health constituencies, and medical professional societies with such
expertise. Interested applicants may self-nominate or be nominated by
another individual or organization.
Individuals selected for appointment to the Committee will be
invited to serve for a term of up-to 4 years. Members appointed as SGEs
receive a stipend and reimbursement for per diem and travel expenses
incurred for attending ACHDNC meetings and/or conducting other business
on behalf of ACHDNC, as authorized by 5 U.S.C. 5703 for persons
employed intermittently in government service.
The following information must be included in the package of
materials submitted for each individual nominated for consideration:
(1) A statement that includes the name and affiliation of the nominee
and a clear statement regarding the basis for the nomination, including
the area(s) of demonstrated expertise or concern that may support
eligibility of a nominee for service on the Committee, as described
above; (2) confirmation the nominee is willing to serve as a member of
the Committee; (3) the nominee's contact information (please include
home address, work address, daytime telephone number, and an email
address); and (4) a current copy of the nominee's curriculum vitae.
Nomination packages may be submitted directly by the individual being
nominated or by the person/organization recommending the candidate.
HHS endeavors to ensure that the membership of ACHDNC is fairly
balanced in terms of points of view represented and that individuals
from a broad representation of geographic areas, gender, and ethnic and
minority groups, as well as individuals with disabilities, are
considered for membership. Appointments shall be made without
discrimination on the basis of age, ethnicity, gender, sexual
orientation, or cultural, religious, or socioeconomic status.
Individuals selected for further consideration for appointment will
be required to provide detailed information regarding their financial
holdings, consultancies, and research grants or contracts. Disclosure
of this information is required in order for HRSA ethics officials to
determine whether there is a potential conflict of interest between the
SGE's public duties as a member of ACHDNC and their private interests,
including an appearance of a loss of impartiality as defined by federal
laws and regulations, and to identify any required remedial action
needed to address the potential conflict.
Authority: Section 1111(g) of the Public Health Service Act, 42
U.S.C 300b-10(g), Section 222 of the Public Health Service Act, 42
U.S.C. 217a, and the Federal Advisory Committee Act, 5 U.S.C. App.
Maria G. Button,
Director, Executive Secretariat.
[FR Doc. 2022-06367 Filed 3-25-22; 8:45 am]
BILLING CODE 4165-15-P
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